Posts by Ena Hackaday

11/11/13 – Has it really been 2 years!

giving_back_1

It has been quite a while since my last post. I thought an update was in order. Sean just celebrated his 17th birthday yesterday. Today marks 2 years and 1 month since they removed his tumor. He is now 6’5 and around 190lbs. We tease him that all those steroids stunted his growth. It’s funny,…

Read More

4/11/12 – 6 months…

Hi everyone, Today was our 6 month mile maker!So, I am sure you guys want to know, where is Sean now (I mean besides taller and heavier)…. His last MRI was at 3 months (late December) and it came out as expected (clear) and we will go for another one in June. He accomplished all…

Read More

1/4/12 – But there is good news too…

Why is it that when we are in the hospital Sean always wakes up at 6am?! Been at CHOA since yesterday….he woke up around 1am yesterday with a stomach bug and by 3am we were in the ER to get IV fluids and meds because he couldn’t keep his steroids down. They ended up making…

Read More

12/15/11 – A good day!

Sean had his first “step-down”in his steroid dosage this week and he is still doing great! Yea!!! Met with the endocrinologist Tuesday and she put us on a 9 week plan to get completely off of them. Slow and easy wins the race 🙂 Had his first out patient PT yesterday….. they kicked his behind!…

Read More

11/14 & 11/22/11 – Some set backs along the way

11/14/11 Hello everyone, Well, I was planning on writing a final update email about Sean’s continued recovery, his birthday this past Thursday and only positive stuff but I am afraid I have some yucky news too. We have been having issues with headaches and fever since Tuesday and yesterday the headaches got so bad we…

Read More

10/29/11 – First week home

Well it has almost been a week since we have been home. What a busy week it has been! Sean said to tell you he is very thankful for all the prayers, cards, gifts, meals and visits….. they all mean a great deal to him. He promises to respond to all the emails and letters…

Read More

10/20 – 10/24/11- Almost Home

10/20/11 – 12:56pm Hello all, I can’t believe I am sending out another update! But here we are, back at Scottish Rite. Sean started to run a fever and by late last night we were admitted into the same room WE JUST LEFT. After blood test showed his white blood count way out of whack…

Read More

10/11 – 10/18/11 – The week we’ll never forget…

10/11/11 – 11:02pm Hello all, Needless to say, it has been a long day. Sean did great in surgery and is resting peacefully right now. With a little help from the drugs, we expect him to do so through the night. He was literally in surgery for almost 7 hours! The doctor said the mass…

Read More

10/10/2011 – Thank you

Thank you to all the Brainy Bytes families that have stood by our side for the past several weeks. So many of you have asked to know about Sean’s surgery and recovery that I have decided (and Sean has requested) to share it here. Don’t worry….your favorite teacher’s aide will be back in action in…

Read More