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11/11/13 – Has it really been 2 years!

2013-11-11 It has been quite a while since my last post. I thought an update was in order. Sean just celebrated his 17th birthday yesterday.…

  • May 25, 2020
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4/11/12 – 6 months…

2012-04-11 Hi everyone, Today was our 6 month mile maker!So, I am sure you guys want to know, where is Sean now (I mean besides…

  • May 25, 2020
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1/4/12 – But there is good news too…

2012-01-04 Why is it that when we are in the hospital Sean always wakes up at 6am?! Been at CHOA since yesterday….he woke up around…

  • May 25, 2020
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12/15/11 – A good day!

2011-12-15 Sean had his first “step-down”in his steroid dosage this week and he is still doing great! Yea!!! Met with the endocrinologist Tuesday and she…

  • May 25, 2020
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11/14 & 11/22/11 – Some set backs along the way

2011-11-14 11/14/11 Hello everyone, Well, I was planning on writing a final update email about Sean’s continued recovery, his birthday this past Thursday and only…

  • May 25, 2020
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10/29/11 – First week home

2011-10-29 Well it has almost been a week since we have been home. What a busy week it has been! Sean said to tell you…

  • May 25, 2020
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10/20 – 10/24/11- Almost Home

2011-10-20 10/20/11 – 12:56pm Hello all, I can’t believe I am sending out another update! But here we are, back at Scottish Rite. Sean started…

  • May 25, 2020
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10/10/2011 – Thank you

2011-10-10 Thank you to all the Brainy Bytes families that have stood by our side for the past several weeks. So many of you have…

  • May 25, 2020